On 28 February 2017 we observe the Rare Disease Day. On the occasion of this international day of campaigning, Milly’s Mission wants to raise awareness for BPAN and NBIA. You can find the events here.
On 12 February 2019 the Orphan Disease Center of the University of Pennsylvania, USA announces the winners of two BPAN research grants, each funded with $ 51,020. For more information see this page.