(Beta-propeller Protein-Associated Neurodegeneration)
On the following pages we would like to inform you about the disorder BPAN and the consequences for those affected. We will keep you informed about the current state of research so that you can find out when and how your donation will be used for BPAN research. We would also like to introduce you to the BPAN team, i.e. all those research institutions, patient organisations and parent initiatives that are active around the globe with a great deal of motivation and commitment and would like to implement a therapy to treat BPAN.