Here we go again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 9th time until 11 June 2022.
This year this charity bike race returns to its original mode as a live event in Philadelphia, USA. However, people from all over the world can once again participate virtually. This gives us in Germany the chance to be part of it again. Be it just by collecting donations or by actually cycling along, having fun and at the same time drawing attention to NBIA and especially BPAN with photos. This year, over 37 different organisations are taking part, and the NBIA variant BPAN will again be represented by our partner organisation NBIA Disorders Association (NBIA DA) in the USA.
We have again registered “Team BPAN Germany” on behalf of Hoffnungsbaum e.V..
From now on, you are all called upon to become part of this team with friends, relatives, acquaintances, celebrities, athletes, colleagues, sponsors, … and to cycle and collect donations for BPAN research. Encourage people around you to join in. Start actions in your neighbourhood and raise awareness about BPAN.
The interesting thing about the MDBR is that if you raise between US$ 20,000 and 30,000, the University of Pennsylvania will match the donations.
Last year, a research grant of US$ 66,366 was awarded to BPAN in this way. Our goal is to surpass the US$ 20,000 mark again in 2022 together with NBIA DA to initiate another new research project!
All those who wish to participate should please register as a virtual participant on the MDBR website so that it is clear that there are many virtual participants and hopefully this option will be available again next year. There is no fee. Please enter the following as your team name: “Team NBIA Disorders”.
What else can you do?
- Post photos and videos on social media to draw attention to the campaign under the hashtags: #MDBR2022 and #TeamBPANGermany or on Twitter and Instagram @MDBRide4Rare and on Facebook @milliondollarbikeride.
- Use the Team BPAN Germany poster in photos and videos.
- You are welcome to document your routes via the STRAVA portal of the MDBR.
Please send the donations directly to Hoffnungsbaum with the note “Team BPAN Germany” by 26.06.2022 at the latest. Hoffnungsbaum will then transfer them collectively to the partner organisation NBIA Disorders Association (NBIA DA). We are very confident that with your support and together with the NBIA DA we will surpass the mark of US$ 20,000 and reach a doubling of the donation amount again.
Donation account: Sparkasse Wuppertal
DE67 3305 0000 0000 3059 79
Reference: “Team BPAN Germany
If you include your address, Hoffnungsbaum can also send you a donation receipt at the beginning of 2023.