Cycling for BPAN
The University of Pennsylvania in Philadelphia is hosting the Million Dollar Bike Ride (MDBR) for the 9th time until 11 June 2022.
Entries by Markus Nielbock
Milly vaccinated against Covid 19
Milly was vaccinated for the third time on 10 January 2022 and thus currently has the best possible protection against infection with Covid 19.
Call for reserach grant applications
A grant has been offered from the funds raised by the Million Dollar Bike Ride 2021 to research BPAN.
Virtual NBIA Family Conference
The 11th International NBIA Family Conference will take place from 20 to 23 May 2021.
Cycling for BPAN
The University of Pennsylvania in Philadelphia is hosting the Million Dollar Bike Ride (MDBR) for the 8th time until 12 June 2021.
Video clip BILD
About a year ago, we did a feature on Milly’s mission and BPAN together with Bild online. We found the video quite convincing.
BPAN research MDBR 2020
The grant of $71,471 goes to Prof Fulvio Reggiori, Dr Mario Mauthe, Prof Muriel Mari and Dr Lara Barazzuol from UMCG Groningen.
7th International NBIA Symposium
The 7th International NBIA Symposium will take place virtually from 30 September to 3 October 2020.
School closed due to Corona
Due to the virus epidemic, Milly’s school will be closed as of tomorrow. The next few weeks will not be easy for parents of children with multiple disabilities.
Rare Disease Day 2020
29 February 2020 is Rare Disease Day, the worldwide day of action for all people suffering from rare diseases, 4 million of them in Germany alone.