How to support Milly’s Mission

Milly Rolli

Your donation for BPAN research

Please transfer your donation to Hoffnungsbaum e.V., as this association can also issue receipts for tax returns. The easiest way to do this is to use the predefined input mask provided by the Fundraisingbox donation and finance tool. You can make targeted donations there for an NBIA variant such as BPAN. This tool enables the organisation to manage donations in a convenient and straightforward manner.

Of course, you can also make a bank transfer to the organisation’s bank account. Please make sure to send us your address or to include it as a reference in the transfer! The receipt will be sent at the beginning of the following year.

Hoffnungsbaum e.V.
Wilhelm-Gülpen-Str. 22
D-52146 Würselen

Sparkasse Wuppertal
IBAN: DE67 3305 0000 0000 305979
BIC: WUPSDE33

Important:
Please state “BPAN” or “BPAN research” in the reference of the transfer so that the donation can be allocated correctly!

We thank you from the bottom of our hearts for your support!

Here you can find out more about the current state of research and about our fundraising goals.

Fundraising events for BPAN research

Of course, you can also support our campaign with a fundraising event, i.e. a fundraising campaign (e.g. on birthdays, anniversaries) or a charity event (e.g. a sports event or concert) for the benefit of BPAN research. Please make family, friends, acquaintances or your employer aware of this possibility. We would be happy to get in touch with associations, companies, foundations or public institutions and discuss the next steps.

(Social) Media and networking

Raise awareness of BPAN! Share our website and social media presence. Talk to your family, friends, colleagues and doctors about this extremely rare disease.

Are you a physician or do research in the field of human biology? Draw your colleagues’ attention to NBIA/BPAN and inform them about current research fellowships and grants.

Are you a journalist or blogger? Write a column, publish a podcast, radio or television report. We’ll be happy to help.

In-kind donations

So far, we’ve been paying all the expenses associated with Milly’s mission out of our own pockets. The more extensive and visible the campaign becomes, the higher the costs will be. We would be delighted if our campaign were also supported by donations in kind, i.e. services that are very time-consuming and/or costly for us.

A heartfelt thank you therefore goes to:

  • Pia and Sigune Lüchtefeld, who translate part of our website and flyer into English.
  • Stefan Ronellenfitsch, who gives our website a fresher, more modern and more readable design at a very reasonable price.
  • Sonia Epple, who did a free photo shoot for us.

We would be happy to receive support from printing companies who offer us the printing of flyers and posters at a reasonable price. Please get in touch with us.

 
Hoffnungsbaum
NBIA DA Logo
NBIA cure Logo
TIRCON Logo
LMU Logo
NBIA Alliance Logo